HEARTBROKEN Kirsty Fletcher cannot cuddle her daughter because the five-year-old has such fragile skin.
Portia suffers horrific burns and tears if she is touched due a rare genetic disorder known as “butterfly skin”.
But she is all set to start school in October.
Mum-of-four Kirsty, 28, said: “It is agonising for me not to be able to comfort her with a hug when she’s ill.
“Even when she was a baby she was passed to people on a silk pillow.
“You can’t cause friction on her skin.
“So if she’s going to fall you have to let her because if you catch her you could pull the skin off her arm.
“But she wants to live as much of a normal life as possible.
“She’s an absolute fighter.”
The disorder, Epidermolysis Bullosa, causes a lack of protein collagen which knits skin together.
24-CARAT SPOILT BRATGhislaine was a spoilt daddy's girl drawn to power…now she's in jail
TIGHT VAN MANCouple who scooped £105m on Euromillions splash out on second hand van & car
ROYAL HAIR FORCEBoJo’s plane scrambled to support RAF fighters intercepting Russian jet
HAVING A RIOTCops chased and pelted with missiles by mob after trying to stop illegal rave
'MY MIRACLE''I finally became a mum after spending £60k on 17 IVF treatments in 6 years'
‘HARD TO BELIEVE’Maddie suspect was booted out of Portugal TWICE for child sex crimes
Kirsty, of Flamborough, East Yorks, said: “There is no cure yet but lots of research. Hopefully there will be one eventually.”
Kirsty added: “I was told three times not to expect her to make it through in hospital but she’s still here.
“I’m determined not to wrap her in cotton wool.”
GOT a story? RING The Sun on 0207 782 4104 or WHATSAPP on 07423720250 or EMAIL [email protected]