A man's random act of kindness to a 10-year-old boy who is losing his sight has left his family "very grateful."

Jack Phillips, from Fazakerley, was told he'd lose his vision back in October 2019 after having problems with his sight since he had his first eye test at school.

The 10-year-old was diagnosed with Bardet Biedl syndrome, an inherited genetic condition that affects one in 100,000 babies born.

Symptoms can include visual impairment, extra fingers or toes at birth, obesity, learning disabilities and type 2 diabetes.

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Jack's mum, Steph Wilkes, spoke to the ECHO back in 2019 and said Jack's sight loss will gradually deteriorate.

She said her son first started having problems with his sight seven years ago when he had an eye test at school, but like every other parent she thought it was normal and he would only need to wear glasses.

But Jack had other health problems and gradually his sight was getting worse, and Steph and John did not know why.

Jack Wilkes, 10, from Fazakerley who has been told he will go blind when he turns a teenager due to a rare medical condition. Photo by Colin Lane
Jack Wilkes, 10, from Fazakerley who has been told he will go blind when he turns a teenager due to a rare medical condition. Photo by Colin Lane

She said: "Losing his vision will be a progressive thing, but it's one of those things that will never get better.

"At first we thought if he's got to wear glasses for the rest of his life, he's got to wear glasses for the rest of his life, but it's going to be a total loss of vision.

"It's mind-blowing."

When the family learnt about Jack's condition they said they were "devastated" " and the "hardest thing" was knowing Jack won't be able to see her or John when he's older.

Speaking to the ECHO last week Steph said that Jack's eyesight has deteriorated and he now struggles to see in low lit areas.

However, the family are determined to make memories while Jack has some of his sight so he remember them for when he is older.

After reading Jack's story, a kind-hearted reader got in touch with the ECHO to say he wanted to offer the 10-year-old his and his son's Everton tickets for this Saturday's match against Watford.

Chris Martin said he wanted to do something for the family after Jack's story 'resonated' with him.

Speaking to the ECHO, he said: "After reading Jack's story, it resonated with me a lot as I have a son not much older than Jack and I struggle to imagine how Jack and his family felt after his diagnosis.

"The reason I offered our tickets is simply because I am in a fortunate enough position to be able to do so.

"Clearly Jack's family are committed to making memories with him while he has his sight and if my son, Tom and I could help facilitate that by donating our tickets then it's a small price to pay."

Jack's mum Steph said the family were "grateful" for Chris' offer and said they already had season tickets for Everton, but the gesture was a "lovely".

The mum said: "It was really thoughtful.

"We are very grateful and it was a lovely gesture.

"We want to say thank you very much to Chris and it really was a great gesture."

The family also hope to be able to go abroad next year so Jack can enjoy those memories for when he is older.

Steph and and Jack's father, John Phillips, 36, are keen to raise awareness about Bardet Biedl syndrome, the rare genetic condition which has led to Jack's vision problems.

She said: "The main thing is raising awareness about Bardet Biedl syndrome as this is what is causing Jack's sight loss, nothing else.

"It's a rare genetic disorder."