A grieving mum has shared a devastating image of her daughter's coffin in a desperate bid for an NHS law change.

Mum-of-two Angela Bain, 35, is campaigning to enable families to escalate their concerns if they feel their loved ones are not receiving proper care after the death of her little girl Amy Lornie.

She believes hospital medics 'ignored' her pleas and failed to diagnose the five-year-old's deadly brain tumour.

Amy was just four when she fell ill in April 2019 and visited doctors with vomiting, weight loss, headaches, lethargy, clumsiness and out-of-character mood swings.

However it was five months before the youngster was scheduled for an MRI on August 19, the mum says.

Angela claims that instead of conducting the scheduled MRI, medics left Amy screaming and writhing around in agony in her hospital bed for around nine hours.

She says nurses repeatedly dismissed her concerns about her daughter's 'deteriorating' condition, instead giving Amy paracetamol that 'did nothing' to ease her suffering.

Amy's mum Angela is campaigning for 'Amy's Rule' in memory of her daughter

When one nurse allegedly responded to Angela's plea for help by asking if Amy had missed her nap time and might just be tired, the mum demanded to see a doctor.

But when Angela got back to her daughter's bedside, she says Amy's body was completely limp as she had stopped breathing - and the little girl would never wake up again.

Doctors and nurses got Amy breathing again and rushed her for an MRI which revealed a large brain tumour and bleed on the brain.

Despite emergency surgeries to relieve the pressure on Amy's brain and remove the tumour, Angela says it was too late for her daughter whose brain stem was 'squashed' during the bleed.

Angela also claims doctors who removed the tumour told her that Amy would have had an 88% chance of surviving with cancer treatment.

After weeks hoping Amy would wake up to begin chemotherapy, the family made the heartbreaking decision to take the little girl off her life support and she died days later in Angela's arms.

The mum believes if her concerns about Amy's worsening condition had been listened to, her daughter would still be alive.

She is now campaigning for 'Amy's Rule' to be enforced.

Her mum has shared devastating images of the little girl's coffin

Angela, of Aberdeen, Scotland, said: "I was back and forth finding doctors, nurses, anybody because Amy was rolling around in bed absolutely screaming in pain.

"I was going crazy for somebody to listen. I'm normally a nice person, I don't raise my voice. But I was angry, I was shouting, I was swearing.

"It was so frustrating. I knew something wasn't right.

"They kept saying they would give her paracetamol but that wasn't doing anything for her pain. It was horrible watching her suffer like that.

"Around 5pm I went to the nurse and told her Amy was deteriorating right in front of my eyes and she asked me if Amy was tired because she'd missed her nap time.

"Amy was five, she hadn't had nap time for a long time. I told the nurse I needed to speak to a doctor.

"When I got back to Amy, her body was just floppy. She'd stopped breathing.

"After they rushed her away I remember thinking 'why did no one listen to me'. I really didn't recognise myself that night, I was so angry.

"She never woke up again after she stopped breathing. The last moments that Amy was Amy were just pure pain roaring out of her. Those are my last memories of her.

"I feel like I can't really remember her voice, all I can remember is her screams.

"The surgeons got a really really sick little girl and did their best to try to fix her but it was too late. In reality she was gone before she even got to them.

"Her brain stem has been completely squashed. It was flat as a pancake."

Amy was on life support for four weeks

'Happy' little girl Amy, who was 'full of life' and loved to sing and dance, first fell ill in April 2019 when she became unable to keep food down due to bouts of 'violent' vomiting.

Over the next five months, Amy visited her GP and out of hours hospital doctors several times - always with the same symptoms of sickness, loss of appetite, tiredness, headaches, clumsiness and mood swings.

At first Amy was treated for a viral infection, then a urinary tract infection, then reflux and even referred to a dietician with possible food intolerances but nothing was helping.

Mum Angela and her partner Ross Lowe, 31, watched in despair as Amy's weight plummeted, going from wearing clothes for five-year-olds to those for three-year-old.

Some months all Amy could stomach was a teaspoon of water every five minutes, given to her night and day by Angela and Ross just to keep the little girl hydrated enough.

When her daughter took a particularly bad turn on August 18 - just two weeks after her fifth birthday - Angela took Amy to Royal Aberdeen Children's Hospital.

Angela claims hospital nurses carried out tests, raising concerns about Amy's problems balancing and that one of her eyes appeared to be larger than the other.

The mum-of-two says Amy was scheduled to have an MRI at the hospital the next day at 12pm but this didn't happen until after 5pm when Amy stopped breathing.

Amy was then taken for emergency surgery to put a shunt in her brain to relieve some of the pressure before she could be flown to Edinburgh's Royal Hospital for Sick Children on August 20.

In Edinburgh, surgeons were able to remove the entire tumour from Amy's brain and the mass was found to be a cancerous medulloblastoma growth.

The oncologist allegedly told Angela that with radiotherapy and chemotherapy, Amy would have an 88% chance of beating the cancer completely and surviving.

With newfound hope, the little girl's family waited for weeks for her to wake up for treatment but Amy never opened her eyes again.

Ross Lowe, 31, Melissa Lornie, eight, Angela Bain, 35 and Amy Lornie, five

Angela said: "Amy was a happy little girl, everybody loved her. She was amazing. She was a natural performer and loved to sing and dance. She was obsessed with Cats the musical.

"She was just so full of life and then bang - she wasn't anymore.

"The surgeons in Edinburgh couldn't have done any more. When they managed to remove the whole tumour, it gave us a sense of hope. That's what doctors do, they fix people.

"It was a huge shock to find out Amy had cancer. I knew something was really wrong for months but I never expected that.

"It was just unreal. It was like it wasn't happening to me. It was like I was standing back watching somebody else's life.

"But the oncologist was really hopeful. He told us Amy had an 88% chance of survival with treatment. She just needed to be awake for the treatment.

"As time went on and she wasn't coming around, I realised there wasn't going to be a happy ending.

"We know now that her brain stem was pretty much dead from the pressure of the tumour and the bleed. And the brain stem doesn't regenerate.

"If she had just got to Edinburgh sooner, if Aberdeen had done the MRI they scheduled, if someone had listened to me when Amy was in pain, she would have survived.

"It all comes down to her diagnosis not being fast enough because there's a complete lack of awareness of the symptoms of brain tumours in children.

"It's not fair, she should still be here. She didn't even get the chance to fight and she had a lot of fight to give."

A medulloblastoma/PNET is a malignant (cancer) tumour formed from primitive or poorly developed brain cells, according to the NHS.

Less than 90 children a year develop medulloblastoma in the UK. However, it is still the most common malignant brain tumour in children, representing 20% of all childhood brain tumours.

They are most common in children between the ages of three and eight, and are slightly more common in boys than girls.

Symptoms include: nausea and vomiting (most common), lethargy and irritability, headaches, clumsiness, difficulty with tasks like handwriting, gradual decline in school work, changes in personality and behaviour and abnormal gait.

After being informed that Amy would only live for three months without cancer treatment, her family made the heartbreaking decision to take her off life support.

Amy was transferred to Rachel House Children's Hospice in Kinross where she took her last breath on September 25 while in her mum's arms.

The family held a funeral on October 4 and Amy was buried in a white cat costume to honour her love for Cats the musical.

Her tragic death has had a devastating impact on Amy's family with Angela still struggling to process what has happened.

And Amy's big sister Melissa Lornie, eight, wants nothing more than to see her sibling again.

Angela said: "Taking Amy off life support was the hardest decision but we knew she was going to die anyway.

"I was lying on the bed and Amy was lying on me with her head on my chest when she took her last breath.

"It was really peaceful. There was no struggling. It sounded like a really contented sigh when you're sleepy. And then she didn't breathe again.

"I think she was waiting for it to just be me and her. We hadn't been alone for so long, there were always doctors and nurses and family but as soon as we were alone she took her last breath.

"To this moment, I don't think I have fully processed what's happened. I know she's gone because she died on me but at random points in the day it hits me again.

"It's like I have been totally paralysed. Getting up in the mornings is hard but I have to for Melissa. When Amy died a part of me died too.

"Melissa is really not good, she misses her sister. None of us like being in our house anymore. It's like being trapped. There are so many bad memories."

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Since losing Amy, Angela has ensured her GP surgery and local school all have HeadSmart leaflets on the symptoms of brain tumours in children to raise awareness.

And determined not to let her daughter's death be in vain, Angela is campaigning for Amy's Rule to be introduced.

Amy's Rule, inspired by Ryan's Rule in Australia, would be a three step process to support patients of any age, their families and carers to raise concerns if a patient's health condition is getting worse or not improving as well as expected.

With the support of MSP Liam Kerr, Angela's proposal will be raised in Scottish Parliament on February 3.

And with the help of her friend Sarah Michie, who lives and is campaigning for Amy's Rule in Windsor, Angela hopes it will eventually be raised in Westminster too.

Angela said: "I remember sitting up one night in the hospice because I could never sleep and thinking 'I can't let this happen to anybody else'.

"I don't want anybody else to feel like I do and wonder what could have happened if someone had listened. I don't want another family to go through this.

"Amy would want me to fight and I'm so determined to make sure there is at least something positive that comes from her death.

"To get Amy's Rule established isn't going to be easy but I will never stop fighting. I'm fighting for me and to get some sort of justice for Amy."

NHS Grampian, the health board for Royal Aberdeen Children's Hospital, are reviewing the circumstances surrounding Amy's death.

A spokesperson for NHS Grampian said: "We are currently reviewing the circumstances around Amy's tragic death.

"We are in regular dialogue with her family and met with her mother to offer an update.

"As the review is ongoing we cannot comment further and we offer our sincerest condolences to Amy's family, friends and all affected by her death."

To sign the petition for Amy's Rule, click here.