Darcy McGuire’s parents first had suspicions there was something wrong with the youngster from Fife after they found a lump on her spine at the age of three.
The Glenrothes girl was said to have been in constant pain, but a number of medical experts dismissed it as “just growing pains.”
Four years later, she was diagnosed with chordoma - an aggressive cancer that affects just one in 20 million children worldwide each year.
Her family revealed on Sunday that she tragically lost her cancer battle.
They will now celebrate her life at a funeral service at Markinch Parish Church in her home town at 11.30am on December 24.
Speaking on the Facebook page Darcy Rae’s Dreams, her family said: “The arrangements for Darcy’s funeral have been made.
“We would request traditional with a hint of yellow - her favourite colour - to be worn at Darcy’s request.
“We would also like to ask only family children attend. Family flowers only and a collection for Rachel House will be done on the day.
“Thank you in advance.”
Darcy was born with congenital kyphosis and needed two major operations at the Royal Hospital for Sick Children in Edinburgh to fuse her vertebrae and straighten her spine when she was a baby.
When her mum Carol first noticed the lump on Darcy’s spine she was referred back to the specialist in Edinburgh
Experts told her that the spine “may look a little different because of the fusions.”
Darcy began falling over daily in January this year and was diagnosed with chordoma.
By this point, she had three large tumours on her spine and there was nothing that could be done to save her.
Her mum revealed in October that Darcy started planning her own funeral as the cancer continued to spread throughout her body.
Speaking shortly after her death on Sunday, grieving mum Carol Donald described Darcy as “one in a million”.