Two sisters found out they had inherited a deadly neurodegenerative disease just months after their dad was diagnosed.
Victoria Mullin and her sister Carys were told by doctors they had Huntingdon's disease just as they were coming to terms with their dad Bill's diagnosis.
Victoria, 33, who is asymptomatic so far, has now changed her working hours so she can spend more time with her family.
Bill, 72, was told he had the condition in September after he had begun stumbling over his feet, slurring words and having difficulty swallowing, reports the Liverpool Echo.
He also began having memory problems.
Victoria, from Knotty Ash, Merseyside, said: "My dad has always been the smartest man I know but there were noticeably things he would be forgetting.
"Initially we didn't know Huntington's disease ran in the family so it wasn't something that had been looked into."
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Bill then phoned his sister in Essex and she told him their uncle had died of Huntingdon's but that she thought it only ran down the male side of the family.
Victoria said her dad's symptoms matched and so he went to the GP before test results confirmed his fears.
According to the NHS website, the disease gradually worsens and is usually fatal after a period of up to 20 years.
But more bad news was to come when Bill's daughters were told they had also inherited the disease.
Victoria said: "I was off work for six weeks after I got my results. It's life changing really, you go from not even knowing it runs in the family to being told that I had it.
"To be told you will definitely get it your lifetime, and unless you die from something else first you will die from Huntington's.
"This is something that will never go away. There's not been a day gone by since that I've not thought of it or it's not touched our lives in some way."
With a 50 percent chance any of her children could inherit the disease, Victoria and her husband must now carefully decide whether to start a family in future.
In relation to work, she said she was determined not to return to the 9-5 grind, "where you feel like you're giving your life to work".
"It's sad that it takes knowing something like this to push you to make changes," she continued.
"As soon as you start having symptoms it's almost like time is ticking and not all those 10 to 15 years will be pleasant years.
"In the advanced stage of Huntington's you're not able to eat, walk or swallow."
She added: "There are days when you feel like everything is under control and you're fine, and there are other days when something will come on TV like an advert with an old person and you realise you're never going to get to that age.
"I've got no choice but I've got to do the best I can and make every day count."
Determined to stay positive, Victoria is undertaking a wing walk to raise money for the Huntington’s Disease Association.
If you would like to make a donation on Victoria's Just Giving page you can do so by clicking here.