A boy born with a rare disease that can kill him in the rain has broken the chances of starting school. Five-year-old Noah Connell's health problems are so rare that his collection of ailments is called "Noah's Syndrome" by doctors.
The young man was born out of the blue in May 2017 in Glasgowto Jade Gordon and Kieran Connell. His new parents were still in his teens then.While they rejoiced in their bundle of joy,Noah was bornwith multiple health conditions that baffled medical personnel.
Toddler had 11 surgeries in his lifetimeand was born with a partial spine missing, underdeveloped jaw, cleft palate, small neck, The airway is drooping. He also became the first baby in the UK to have a metal scaffold inserted into his face.
Noah also has hemifacial dwarfism. This means that the lower half of one side of the face is underdeveloped. This means that if anything, including water, enters his mouth, it can kill him.
But five years later, Noah, from Barmalock, Glasgow, thrived, and his mother and father (he was 18 and he was 16 respectively when he was born) never I've reached a milestone I never thought I'd see. And today, as he joins his classmates at his Park Primary School in Kelborne, Glasgow, he looks sharp in his new blazer.
Her 23-year-old Jade, a mother of one, said: 36}
"I cried the whole time, but when we shake him off, I cry because he failed everyone. He continues to learn more and more and prove everyone wrong.We are so proud and overwhelmed with pride."
When Noah was born at Glasgow Royal Infirmary weighing 6 pounds 7 ounces, he was not breathing and was immediately taken away for emergency treatment. Photo Jade's baby, who attended her 18th birthday party, showed no signs of a baby bump, even though she was six months pregnant. It took the doctors hours to find her when she went to the hospital in pain. Noah was in labor - and Noah showed up. He was diagnosed with a Pierre Robin sequence, having trouble breathing.
Noah became the first baby in the UK to have a metal scaffold inserted, holding bone fragments in place and his suffocating ancestor who pushed forward to cut his face.ch to save his life.
Jade remembers his two parts of the operation like it was yesterday. He waited 12 hours for the first part of the operation to be completed and 10 hours for the second part to be completed. Ten months before he was discharged from the hospital, Kieran and Jade were taught how to turn metalworking screws by precise measurements.
Despite everything he's been through, Jade says Noah loves to shake hands with everyone he meets, Christmas, Celtic, Little He's the "smiliest" boy who's into the mix. Is called. Noah's best friend from nursery school also ends up in the same class as him at school, and Jade says the pair have "double trouble".
Jade said: I'm just used to it. I won't change anything ''
Jade revealed that not everyone was kind to her Noah. Trolls online say desperately cruel things about Noah and his family. People often stare when they're in public, but Jade says she tries not to let negative emotions affect her. Jade, who was in training, said support from the Glasgow Children's Hospital Charity helped her family.
A family hugs a little boy in his PICU using his MoVE project for the charity. I was. A hospital with sensory equipment funded by them.
Kirsten Watson, CEO of Glasgow Children's Hospital Charity, said: Our charity has supported children like Noah for her 20 years and we are so grateful for the generosity of the people of Glasgow.
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